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Archive for June, 2010

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Gluten Please

Tuesday, June 8th, 2010

“I want a bite of gluten!” ~ Paul while crying his eyes out. *repeat over and over And to think it is only day 3! UGH! First time to the grocery with not letting him have a donut while I shop. He and the sisters were not happy. Some things just break your heart.

Allergies a plenty

Monday, June 7th, 2010

I guess with a family of 6 it is bound to happen that some of the people around here have allergies or issues. These aren’t things that define us but they are all things that affect us. It is not just the fact that we have to be gluten free now it is also the [...]

Shepherds Pie

Monday, June 7th, 2010

Naturally Gluten Free Shepherds Pie 1 pound ground beef 1 medium onion diced 8 ounces frozen peas and carrots 3 cups shredded cheese 5 cups prepared mashed potatoes Brown ground beef and diced onions in a large skillet. Once meat is brown add carrots and peas until warm. Pour beef and veggies into the bottom [...]

Sometimes Damage is the Best Option

Monday, June 7th, 2010

We received the results of Madeline’s MRI today. She has had a static event (ie. seizure) sometime since her last MRI in 2007 that made her have brain damage. This is the reason her left side is weaker. The good news is that this damage happened once, meaning it isn’t some sort of deterioration. It [...]

Day 1 Gluten Free

Sunday, June 6th, 2010

Today was the first day of the rest of Paul’s life. He ate gluten free today and he did fine. Kimberly and I went to Whole Foods and Trader Joe’s today shopping for new foods for Paul. It was a nice outing for the two of us and she was a big help on looking [...]

17 years

Saturday, June 5th, 2010

Happy Anniversary to us. 17 seems like such a big number, but in our minds it seems like we have only just begun.

1 in a Million

Saturday, June 5th, 2010

While I was at the Hospital with Madeline I got the call regarding Paul’s blood test results. He is a celiac. Every time I say it I get a tear in my eye. (Maybe that is due to the lack of sleep from the hospital stay but maybe not.) My boy has a lifelong autoimmune [...]

Day 5 and the Release

Saturday, June 5th, 2010

We woke up this morning bright and early in order to get ready for the MRI Mimi was scheduled to do at 8 AM. The wonderful technician came in to remove the EEG from Mimi’s head. She was so happy when it was removed and she could move about the room with ease. We waited [...]

Day 4 in the PEMU

Friday, June 4th, 2010

Mimi finally fell asleep around 11 last night. We were awoken at 5:30 by Grammy with donuts. Grammy played Memory with Mimi and I before she had to get going. The doctors came in and we continued to discuss the options in Madeline’s care. We decided that we would give this whole thing 24 more [...]

Day 3 in the PEMU

Thursday, June 3rd, 2010

Madeline and I slept peacefully through the night only being awoken for moments a couple of times from the nurses checking vitals. Unfortunately that means there weren’t any events through the night. When the doctor came in he talked about how important it is to try to see events. (Drove me nuts because obviously I [...]

Day 2 in the PEMU

Thursday, June 3rd, 2010

Day 2 was full of visitors. First the family came down. Mimi loved playing with her siblings. She enjoys showing them the new things that have happened while they were gone. After the family left Mimi and I ate lunch. It wasn’t long until Mrs. Larsen, the preschool teacher, and her daughter stopped by to [...]

Perfectly Normal

Wednesday, June 2nd, 2010

The only thing going on with Madeline’s left side is that it isn’t her dominant side. Well, that and the fact that this on call Neurologist is a bit hyper.

Day 1 in the PEMU

Tuesday, June 1st, 2010

Today was pretty uneventful. Grammy drove Mimi and I downtown to the hospital and we got all checked in. They got Mimi all hooked up to her EEG and video monitoring. When the nurse came in to talk to her she asked what she wanted to be called. To our surprise when the nurse asked [...]

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