A couple weeks back Paul had a follow-up appointment with his GI doctor. The good news of the appointment is that Paul is growing. He has grown a lot this last year. Unfortunately, while the medication had fixed his stomach issues for a while, his discomfort has been increasing and it was clear he needed [...]
Today Paul and I met with the GI doctor and the Nutritionist. The appointment started out well with them weighing Paul. He has gained 2.5 pounds since he last saw the doctor two months ago! This is huge growth for Paul. I believe this growth is due to his increase in appetite from controlling the [...]
A huge part of me is grieving. I have lost so many things recently. First and foremost I have lost my Father. Not a day goes by that I don’t shed a tear over this. Not a moment goes by that I don’t wish he wasn’t still here. My life is never going to be [...]
“I want a bite of gluten!” ~ Paul while crying his eyes out. *repeat over and over And to think it is only day 3! UGH! First time to the grocery with not letting him have a donut while I shop. He and the sisters were not happy. Some things just break your heart.
While I was at the Hospital with Madeline I got the call regarding Paul’s blood test results. He is a celiac. Every time I say it I get a tear in my eye. (Maybe that is due to the lack of sleep from the hospital stay but maybe not.) My boy has a lifelong autoimmune [...]